Hello Angie
I'm sure that little Karlie will not be slowed down too much by a feeding tube. It may help her to have more energy, and/or endurance.
I just looked at her web page...she is such a little sweet heart. I wouldn't have any trouble spending time with her.
I was 14 years in nursing; and the last few, I specialized in pediatrics. When I was in training; my first patient was a little 4 month old fellow with CF, Spina Bifida, and "Short Gut Syndrome."
Although he got really sick at times, they did miracles with that little fellow.
I know that God is able to give Karlie similar miracles; and today, I am praying that she will be able to play and have fun, like all little ones her age like to do.
Father in heaven
I pray that You "shall supply all Karlie's needs; according to Your riches in glory, by Christ Jesus." (Phil.4:19). Give her what she needs Lord, to play and have fun, like little ones so love to do. May her parents experience the joy that comes from watching their little ones enjoy a child's world.
I thank You for hearing our prayers.
Amen.
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Soul winning is soul loving.
see 1 Thes.5:14-15).
Your brother in Christ
David T. Battler